ClinicaliQ Trial Snapshot
- Registry for Patients With X-Linked Hypophosphatemia — Recruiting • NCT03193476.
- What is being tested: This international prospective registry collects observational data on treatment patterns, disease progression, and long-term outcomes in patients with X-Linked Hypophosphatemia (XLH), covering both adult and paediatric populations across multiple centres.
- Patient eligibility overview: The registry enrolls patients with confirmed XLH diagnosis across all age groups (adult and paediatric), with no apparent restrictions on treatment status, allowing characterisation of the full clinical spectrum of the disease.
Use This Page For
- Quick orientation before opening the registry record.
- Checking recruitment status, phase and sponsor at a glance.
- Connecting this trial to nearby guidelines, Drug Science and education.
What This Trial Is Studying
This is an international, multicentre, prospective, non-interventional, observational Registry of patients with X-Linked hypophosphatemia (XLH). The main objective of this XLH Registry is to collect data to characterise the treatment, progression and long-term outcomes of XLH in both adult and paediatric settings.
Eligibility Snapshot
- A patient must meet the following criteria at the enrolment visit (baseline) to be eligible for inclusion into this XLH Registry Inclusion Criteria: 1. Patients aged from ≥0 years of age at baseline 2. In the opinion of the treating physician the patient has a clinical presentation, radiological, biochemical or genetic investigation results that support diagnosis of XLH
- Patient is not currently participating in an interventional clinical trial A patient who meets any of the following criteria at the enrolment visit (baseline) will be excluded from this XLH Registry
Use the source registry for the full inclusion and exclusion criteria before discussing referral or enrolment.