Sisters with life-limiting condition taking NHS fight to Parliament

• Two sisters with life-limiting neurological condition are escalating NHS access dispute to parliamentary level, highlighting potential gaps in NHS service provision for rare neurological diseases
• The case raises questions about equity of access to NHS care and the processes for addressing service limitations in rare disease management
• Clinical teams may face increased scrutiny regarding timely diagnosis, referral pathways, and treatment access for rare neurological conditions

Olivia Dews and sister Charlotte Casey have a life limiting neurological condition.

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